The father of Donate4Daithi says his family is devastated but hopeful after his son was temporarily suspended from the heart transplant list.
"When Dáithí was born he was given under a 10% chance of survival in his first few weeks but he's now six years old, he's a freeman of Belfast and he has his own law.Image source,Dáithí's family decided to keep the news private for a time so as not to overshadow the celebrations.
"The longer Dáithí stays on this list, the more chance there is of these kinds of problems arising. We need to keep raising awareness about paediatric organ donation and keep that conversation going. "I'm just so proud of him. Every day we fall more in love with our Dáithí and that's why it was that extra bit devastating when we did get that phone call because life without our Dáithí is unimaginable.
Mr Mac Gabhann said his family is now concentrating on getting Dáithí back on the transplant list, with the hope of getting the new heart he has been waiting five years for.
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