Controversy Surrounding Newborn Health Screening in New Jersey

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Controversy Surrounding Newborn Health Screening in New Jersey
Newborn Health ScreeningGenetic DiseasesBlood Storage
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All US states take pinpricks of blood from newborns to test for diseases. New Jersey stores them for decades and may allow them to be used in police investigations.

When Hannah Lovaglio’s children were born, she didn’t think twice about the newborn health screening they received in the hospital. The routine test uses a few drops of blood from a heel prick to test for dozens of potentially fatal or disabling genetic diseases . “I assumed that this was for my child’s best interest and for the best interest of public health,” says Lovaglio, a pastor in New Jersey.

In the lawsuit, filed on November 2, the plaintiffs argue that New Jersey’s practices violate their children’s Fourth Amendment rights against unreasonable searches and seizures. The suit asks the court to bar the Department of Health from keeping blood samples after screening is completed, unless it obtains informed consent from parents to keep the blood for specific, disclosed purposes.

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