Meghan Holohan is a digital health reporter for TODAY.com and covers patient-centered stories, women’s health, disability and rare diseases.
When Emma Fogarty was born, doctors noticed something unusual. The infant had no skin on her left foot or right arm. Worried, doctors sent her to Ireland’s largest children’s hospital to understand why. “Obviously were like, ‘Oh my God, something wrong,’” Fogarty, 40, of County Laois, Ireland, tells TODAY.com. After a few weeks, her parents learned that their daughter had a rare genetic skin condition called epidermolysis bullosa , also known as butterfly skin.
” When Fogarty became a teen, she began speaking about her life with EB. “I wanted to give hope to other families who live with EB,” she says. “Yes, I’ve lived a really long difficult 40 years, but I’ve done it.” Over the years, some changes have occurred in the treatment of EB, including various skin creams and bandages specifically for EB. Still, Fogarty and others with EB are waiting for a cure. “There haven’t been any huge, miraculous changes,” Fogarty says.
United States Latest News, United States Headlines
Similar News:You can also read news stories similar to this one that we have collected from other news sources.
Perry Farrell and Wife Etty Lau Farrell's Relationship TimelinePerry Farrell met his wife, Etty Lau Farrell, when she worked as a backup dancer on Jane's Addiction's 1997 tour
Read more »
Etty Lau Farrell Addresses Perry Farrell's Stage Incident: 'He Will Recover'In a heartfelt statement, Etty Lau Farrell addressed her husband Perry Farrell's onstage outburst during a recent Jane's Addiction concert. She revealed that he had been experiencing tinnitus and a sore throat, leading to frustration with the stage volume. While acknowledging his unacceptable behavior, she expressed confidence in his recovery and ability to continue sharing his music.
Read more »
Colin Farrell Talks Prosthetically Baring It All for His Penguin Nude SceneThe audience doesn't actually see it in the HBO DC series' premiere, but the actor's make-up job in the torture scene included a surprising level of detail.
Read more »
The Penguin Cast Talk Colin Farrell's Prosthetics & Batman Fighting TacticsColin Farrell answers questions during The Penguin red carpet
Read more »
Colin Farrell's 10 Most Underrated MoviesColin Farrell in Phone Booth and In Bruges
Read more »
Ryan Gosling Needs To Reboot Colin Farrell's 47% Disappointment After The Fall GuyRyan Gosling as Colt Seavers in a Cowboy Hat in The Fall Guy
Read more »