Defining cerebral palsy only as a childhood condition fails to acknowledge the many adults living with the disease.
Despite this, the Centers for Disease Control and Prevention still label cerebral palsy as"the most common motor disability in childhood."
"The vast difference in care can leave many adults with cerebral palsy with low confidence that they will be able to receive the care they need or have their concerns heard," said Peterson. Most standards of care for adults with cerebral palsy are carried over from pediatrics, says Peterson, focusing on individual body parts and addressing issues such as spasticity, joint contractures, pain and musculoskeletal disorders, leaving no standard of care for adults.
"Robust operational definitions with language like this help drive accurate research about the correct subject group. There is research needed specifically about adults with cerebral palsy and the impact that this lifelong condition has. Having a more accurate definition helps guide that research." Clear definitions about cerebral palsy and its lifelong impact also play a crucial role in public health surveillance.
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