Rebecca Cohen is a breaking news reporter for NBC News.
Celine Dion told NBC's Hoda Kotb that trying to sing while having stiff-person syndrome is 'like somebody is strangling you.' In an exclusive interview, which was previewed on 'TODAY,' Dion shared how the condition is affecting her life — and her singing career. She said when she tries to sing, it feels like someone is pushing on her larynx and pharynx and that when she tries to make her voice higher or lower, she spasms. Tune in to the full primetime special at 10 p.m.
It started in her throat, Dion told Kotb in her first television interview since her diagnosis, but added that it can also show up in the abdomen, spine and ribs. She said when she tries to point her feet, or puts her hands into a certain position when she is cooking, they not only cramp up, but they also get into 'a position of, like, you cannot unlock them.' Roughly one-to-two people out of every million have stiff-person syndrome.
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