Yusuf Saeed, an 8-year-old born with a rare genetic blood disorder called thalassemia, received a new and transformative gene therapy treatment at Cohen Children’s Medical Center on Long Island.
Yusuf Saeed is smiling behind his mask, and he has every reason to. The 8-year-old was born with a rare genetic blood disorder called thalassemia. This means his body does not produce enough hemoglobin, a vital component of red blood cells, according to the Centers for Disease Control and Prevention.As a result, he suffered from severe anemia."Historically, the only treatments were medical management with chronic transfusions or a bone marrow transplant," said Dr.
Banu Aygun, the associate chief of Hematology at Cohen, said doctors actually collect the patient's own blood cells to begin this procedure. " send them to a lab where the gene is added into the blood cells so the patient starts producing normal adult hemoglobin," she said. "When the cells are ready, we infuse them back to the patient." Yusuf was the first patient in New York to receive this infusion. He spent six weeks in the hospital.
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