Andrea Miller, diagnosed with Lennox-Gastaut Syndrome, seeks independence but relies on her parents for safety due to frequent and unpredictable seizures.
Andrea Miller, of Milpitas, center, and her parents, Greg Miller, and Cathi See-Miller at the Silicon Valley Independent Living office in San Jose, Calif., on Oct. 21, 2024. Andrea Miller is diagnosed with a rare form of epilepsy called Lennox-Gastaut Syndrome .Andrea Miller longs for the day when she can go somewhere safely on her own.
Andrea Miller’s father, Greg Miller, talks about his daughter’s rare form of epilepsy called Lennox-Gastaut Syndrome during an interview at the Silicon Valley Independent Living office in San Jose, Calif., on Oct. 21, 2024. Greg, who uses a wheelchair, has multiple sclerosis and spinal cord injuries.
The current price for the EpiMonitor app and medical watch is $900, which is a financial strain for the Miller family as Andrea and Gregs’ income comes from disability checks. That’s where the comes in. The nonprofit organization provides services and resources to all persons with disabilities to help further their independence in Santa Clara County. According to U.S. Census data, 4.9% of people under 65 years old in Santa Clara County have a disability.
People with disabilities can cut food with one hand using an adaptive cutting board with spikes to hold food in place like this one, available for clients to borrow at Silicon Valley Independent Living in San Jose, Calif. Andrea moved out of Greg and Cathi’s apartment afterwards to live with her partner, who would take meticulous notes on the timing and symptoms of her seizures. As the seizures became more aggressive and common overtime, doctors would eventually use her partner’s notes to narrow down Andrea’s diagnosis to LGSThose with LGS can live into their 50s or 60s, but often require lifelong care.
Epilepsy Lennox-Gastaut Syndrome Independence Seizures Family Care
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