A family in Georgia said their daughter recently died due to a rare neurological disorder, and they are sharing their story to help others.
“I decided to see if she could fight it on her own. We had all the equipment at home. I used the oxygen to keep up with her breathing and we used the suction machine and breathing treatments,” Emi’s mother, Michelle Wilkerson, said.“When she got sickest, we called the paramedics and went to the hospital, but then she passed,” Wilkerson said.The family said baby Emi died on July 22 at Wayne Memorial Hospital at 16 months old, with a funeral held on Tuesday.
Emi’s mother said several parents who also lost a child to KIF1A have reached out to her in support. One mother shared a story about seeing a rainbow right after her child passed and knew it was a sign - something Wilkerson said she also witnessed in Emi’s passing. Wilkerson said being out of a job during this loss has been challenging, but she wants to use her foundation in Emi’s honor for the better.
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