10 Tips on How to Advocate for a Long COVID Diagnosis (and Treatment)

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10 Tips on How to Advocate for a Long COVID Diagnosis (and Treatment)
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Doctors who study the condition explain how to get diagnosed with long COVID and have your symptoms treated seriously.

our years after the coronavirus pandemic upended our lives, COVID’s staggering long-term toll is coming into focus: Nearly 7 percent of American adults have ever hadDespite how common it is, long COVID continues to baffle many doctors. Some patients see 10 to 20 practitioners before they finally get a diagnosis and meaningful treatment, saysDavid Putrino, PhD

Although there aren’t any FDA-approved long COVID treatments, many off-label options “can help decrease or manage symptoms and improve function and quality of life,” says Dr. Azola. Plus, if you see a health care provider who is experienced in long COVID, they’ll look for common conditions that are thought to be triggered by SARS-CoV-2, says Dr. Curtin

“If you take those numbers and put them in front of the doctor and they're abnormal…it's a little harder for that doctor to ignore this and say, oh, you're just depressed because you got sick," he says.It's impossible to share your entire medical history in a 15-minute appointment.

Doctors also often haven’t learned much about common long COVID comorbidities like POTS in medical training, Dr. Curtin explains. So they may not realize POTS symptoms can resemble anxiety and panic attacks and thus refer patients to a mental health care provider instead of screening for POTS.

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